Patient Engagement
Open Forum
Event Highlights,
2019 edition
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Patient Engagement Open Forum 2019 in numbers
200+
Attendees
140+
Organisations
1,000+
Livestream views
7
Interactive sessions
100,000+
Social media exposure
Events hashtags
#PEOF2019 & #PatientEngagement
trended in Belgium for two days
Patient Engagement Open Forum highlights video
Presentations from sessions
During the Patient Engagement Open Forum, participants had the option to deep dive into ongoing patient engagement work conducted by many initiatives. Topics range from tools and recommendations for effective patient engagement, methods for monitoring and evaluation of impact and outcomes in patient engagement activities, and fair market compensation for patient input. Below you can find the presentations of the plenary sessions and workshops.
From the Idea
to 200.000 Patients
Patient engagement – How to reach beyond the easy targets?
Learning from good practices and applying to your everyday work
Fair Market Value of Engaging Patients
Legal Agreements between Patients, Patient Advocates and Pharma
Metrics to determine the shared value of patient engagement
2019 Agenda
Day 1
9:00
Registration to PARADIGM’s General Assembly for consortium partners (closed event)
10:00
PARADIGM’s General Assembly for PARADIGM consortium partners only (closed event) – Agenda
12:00
13:00
Welcome and Official Opening of the Patient Engagement Open Forum
Matthew May (EPF) – EUPATI
Nicholas Brooke (The Synergist) – PFMD
13:30
Panel with National and EU HTA and Regulators
Nathalie Bere – EMA
Daniel O’Connor – MHRA
Sandra Garcia Armesto – IACS
Sabine Ettinger – LBI-HTA
Nicola Bedlington (chair) – EPF
14:30
4 Parallel interactive sessions
- Session 1: Learning from good patient engagement practices and applying to your everyday work
Room: Plenary room
- Session 2: Legal contracts between Patients, pharma and researchers – where are we and what is missing?
Room: Creativity- breakout room
- Session 3: PART 1: Understanding and prioritising gaps in patient engagement practices and processes
Room: Klimt – breakout room
- Session 4: Patient Engagement is everybody’s responsibility. How to reach beyond the easy targets? (online session)
16:30
Coffee break
17:00
Capturing takeaway messages from the day – Tamás Bereczky (EUPATI)
18:00
End of Day 1 – Reception with drinks and finger food – Mingle, share your holiday experience, network, work, discuss, and have fun
Day 2
8:45
9:15
3 Parallel interactive sessions
- Session 5: Toolkit for compensating patients and patient groups for their expert input
Room: Klimt – breakout room
- Session 6: Metrics to determine the shared value of patient engagement
Room: Plenary room
- Session 7: PART 2: Creating future patient engagement tools
Room: Creativity- breakout room
11:15
11:45
Guest Speaker: Maya Zlatanova – FindMeCure
12:15
Capturing takeaway messages from the morning – Mathieu Boudes (EPF) – PARADIGM
12:45
Lunch
14:00
15:00
3 Parallel co-creation workshops:
(In order to ensure an active workshop for all, the number of participants is limited to 40 in each session, and will be chosen by organisers based on the principle of representativeness of stakeholders in each workshop).
- Workshop 1 – How to engage patients in early development and preclinical research phases of medicines development
Room: Klimt – breakout room
- Workshop 2 – How to engage patients in the clinical trial phases
Room: Plenary room
- Workshop 3 – The role of patients in co-designing plain language summaries to maximise the impact and understanding of research result
Room: Creativity- breakout room
17:00
End of Patient Engagement Open Forum – Farewell drinks