Delivering patient engagement beyond aspirations
Brussels, September 18th and 19th
About the Forum
PARADIGM, PFMD and EUPATI welcome you to the Patient Engagement Open forum – a two day event where we will explore patient engagement beyond aspirations and work in a multi-stakeholder context to make it happen.
The Forum aims to provide a holistic perspective of patient engagement, the landscape and actors, and foster collaboration and co-creation while breaking down fragmentation and silos that are often present in patient engagement work.
The agenda of the two days offers a deep dive into some ongoing patient engagement work done by many collaborative initiatives. Topics range from tools and recommendations for effective patient engagement, methods for monitoring and evaluation of impact and outcomes in patient engagement activities, and fair market compensation for patient input to interactive sessions on assessing good practices in patient engagement and more.
Why you should attend
Get an in-depth overview of the impactful collaborative work streams in the patient engagement ecosystem and network with 200+ professionals from healthcare industry, patient advocates and organisations, regulatory representatives and nonprofits that are working together to make patient engagement the norm through tools, recommendations, good practices, framework and capacity building.
Highlights of the programme:
Presentations of ongoing patient engagement projects around the world
Interactive sessions where you will get to be involved in the co-creation of the tools shaping the future of patient engagement
Access to resources available now and receive an update about tools expected in the next 12 months
Registration to PARADIGM’s General Assembly for consortium partners (closed event)
PARADIGM’s General Assembly for PARADIGM consortium partners only (closed event) – Agenda
Welcome and Official Opening of the Patient Engagement Open Forum
Matthew May (EPF) – EUPATI
Nicholas Brooke (The Synergist) – PFMD
Panel with National and EU HTA and Regulators
Nathalie Bere – EMA
Daniel O’Connor – MHRA
Sandra Garcia Armesto – IACS
Sabine Ettinger – LBI-HTA
Nicola Bedlington (chair) – EPF
4 Parallel interactive sessions
Capturing takeaway messages from the day – Tamás Bereczky (EUPATI)
End of Day 1 – Reception with drinks and finger food – Mingle, share your holiday experience, network, work, discuss, and have fun
3 Parallel interactive sessions
Guest Speaker: Maya Zlatanova – FindMeCure
Capturing takeaway messages from the morning – Mathieu Boudes (EPF) – PARADIGM
3 Parallel co-creation workshops:
(In order to ensure an active workshop for all, the number of participants is limited to 40 in each session, and will be chosen by organisers based on the principle of representativeness of stakeholders in each workshop).
End of Patient Engagement Open Forum – Farewell drinks
The PE Open Forum is jointly organised by PFMD, EUPATI and PARADIGM
A public-private collaboration for better patient engagement co-led by the European Patients’ Forum (EPF) and the European Federation of Pharmaceutical Industries and Associations (EFPIA) and funded by the Innovative Medicines Initiative. It aims to participate to the co-creation of a sustainable framework allowing systematic, meaningful and ethical patient engagement in medicines development. Strong of 34 partners, from patient organisations to pharmaceutical companies, regulators and academic, the project started in March 2018 and will end in August 2020.
Patient Focused Medicines Development (PFMD) was established in October 2015 as an open, independent global coalition of health stakeholders.
PFMD aims to transform the way in which we understand, engage, and partner with patients globally in the design and conducting of research and development of medicines by focusing on unmet patient needs. We are bringing together relevant experts and synergizing disparate but complementary efforts that integrate the voice of the PATIENT across the lifecycle of medicine.
PFMD is driving the culture change and co-producing tools needed to make systematic patient engagement happen.
The European Patients’ Academy (EUPATI) is a pan-European programme implemented as a public-private partnership by a collaborative multi-stakeholder consortium from the pharmaceutical industry, academia, not-for-profit, and patient organisations. The Academy was started, developed and implemented as a flagship project of the Innovative Medicines Initiative, and continues to be led by the European Patients’ Forum.
EUPATI supports patient engagement in medicines development by providing education and training to patients, industry, and other stakeholders through e-learning, face-to-face training, 19 national platforms, and an online Toolbox currently used by more than 1.9 million people.