Patient Engagement
Open Forum

COVID-19 update

The PEOF2020 is an important milestone for our patient engagement community and therefore we are investigating several options to make it happen. 

It cannot be postponed for budgetary reasons after August 2020 due to the lifespan of the IMI PARADIGM project.

The decision on the modalities (online or face-to-face) for organising the PEOF2020 will be taken by April 23rd

Brussels, June 25th and 26th 2020

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About the Forum

PARADIGM, PFMD and EUPATI welcome you to the Patient Engagement Open forum – a two-day event where we will work together, in a multi-stakeholder context, to turn patient engagement into reality.

The Forum aims to provide a holistic perspective of patient engagement, the landscape and actors, and foster collaboration and co-creation while breaking down fragmentation and silos that are often present in patient engagement work.

The agenda of the two days offers a deep dive into some ongoing patient engagement work done by many collaborative initiatives. Topics range from tools and recommendations for effective patient engagement, methods for monitoring and evaluation of impact and outcomes in patient engagement activities, and fair market compensation for patient input to interactive sessions on assessing good practices in patient engagement and more.

2020 Agenda

This will continue to update in the following week.
Watch the space for further information

Day 1

13:00 – 14:00

Lunch/ Registration


Welcome words


Keynote speaker: Rogier Snijdewind
Senior Advisor Responsible Investment at PGGM Investments

15:00 – 17:30

4 Parallel interactive workshops


Cocktail and dinner

Day 2

8:30 – 9:00

Coffee and registration

9:00 – 10:00

Global perspectives on patient engagement

10:00 – 12:30

4 Parallel interactive workshops

12:30 – 13:30


13:30 – 16:00

4 Parallel interactive workshops

16:00 – 16:30

Coffee break


Why you should attend

Get an in-depth overview of the impactful collaborative work streams in the patient engagement ecosystem and network with 200+ professionals from healthcare industry, patient advocates and organisations, regulatory representatives and nonprofits that are working together to make patient engagement the norm through tools, recommendations, good practices, framework and capacity building.

Highlights of the programme:

Presentations of ongoing patient engagement projects around the world

Interactive sessions where you will get to be involved in the co-creation of the tools shaping the future of patient engagement

Access to resources available now and receive an update about tools expected in the next 12 months

Forum location

About us

The PE Open Forum is jointly organised by PFMD, EUPATI and PARADIGM

A public-private collaboration for better patient engagement co-led by the European Patients’ Forum (EPF) and the European Federation of Pharmaceutical Industries and Associations (EFPIA) and funded by the Innovative Medicines Initiative. It aims to participate to the co-creation of a sustainable framework allowing systematic, meaningful and ethical patient engagement in medicines development. Strong of 34 partners, from patient organisations to pharmaceutical companies, regulators and academic, the project started in March 2018 and will end in August 2020.

+Find out more

Patient Focused Medicines Development (PFMD) was established in October 2015 as an open, independent global coalition of health stakeholders.

PFMD aims to transform the way in which we understand, engage, and partner with patients globally in the design and conducting of research and development of medicines by focusing on unmet patient needs. We are bringing together relevant experts and synergizing disparate but complementary efforts that integrate the voice of the PATIENT across the lifecycle of medicine.

PFMD is driving the culture change and co-producing tools needed to make systematic patient engagement happen. 

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The European Patients’ Academy (EUPATI) is a pan-European programme implemented as a public-private partnership by a collaborative multi-stakeholder consortium from the pharmaceutical industry, academia, not-for-profit, and patient organisations. The Academy was started, developed and implemented as a flagship project of the Innovative Medicines Initiative, and continues to be led by the European Patients’ Forum.

EUPATI supports patient engagement in medicines development by providing education and training to patients, industry, and other stakeholders through e-learning, face-to-face training, 19 national platforms, and an online Toolbox currently used by more than 1.9 million people.

+Find out more

Building a global patient engagement framework

In the fast-paced environment, patient engagement is at a turning point and in the last two days, over 250 people have shared their progress, challenges and ideas to turn patient engagement into a systematic practice for all the stakeholders. Nicola Bedlington, Daniel De Schryver and Nicholas Brooke will take us through the learnings from the two days followed by the next steps.