Patient Engagement Open Forum

The Patient Engagement Open Forum is going online with a series of virtual events planned this year. A patient-centred environment for co-creation of solutions with and by all involved stakeholders to practice and advance patient engagement (PE).

Registrations for sessions on April 12 and 14 are now open.

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About the Forum

The Patient Engagement Open Forum 2022 is organized online as a series of events, once every quarter. 

2022 Agenda

All virtual sessions will start at 14:30 CET/ 8:30 EST. Information related to the event, sessions, speakers and post-session resources are available on Synapse – the global patient Engagement map and network

May 24, 2022

16:30 to 18:00 (CET) Monitoring Patient Engagement to Learn: Increasing intelligence through an integrated strategy

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May 25, 2022

14:30 to 16:00 (CET) Stakeholder Expectations Mapping for PE in Digital Health & Data
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April 12, 2022

14:30 to 16:00 (CET) Patient Engagement in 2022: converging trends and new emergent actors

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  • 16:00-16:30: Break

16:30 to 18:00 (CET) The Fusion of Patient Engagement & Patient Experience Data: Strengthening Global Focus and Stakeholder Convergence

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April 14, 2022

14:30-16:00 (CET): Making Meaningful Patient Engagement In Translational Research The New Normal

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  • 16:00-16:30: Break

16:30 to 18:00 (CET) Taking action and driving change: co-creating frameworks and standards for remuneration of patient-pharma interactions

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February 23, 2022

16:00 – 17:30 (CET): Demystifying the methodology to determine Market Value when remunerating the patient community for interactions with the pharmaceutical industry


Session Resources

Program Committee

Why you should attend

Get an in-depth overview of the impactful collaborative work streams in the patient engagement ecosystem and network with professionals from healthcare industry, patient advocates and organisations, regulatory representatives and nonprofits that are working together to make patient engagement the norm through tools, recommendations, good practices, framework and capacity building.

Highlights of the programme:

Presentations of ongoing patient engagement projects around the world

Interactive sessions where you will get to be involved in the co-creation of the tools shaping the future of patient engagement

Access to resources available now and receive an update about the upcoming tools

About us

The PE Open Forum is jointly organised by PFMD, EUPATI and EPF

Patient Focused Medicines Development (PFMD) was established in October 2015 as an open, independent global coalition of health stakeholders.

PFMD aims to transform the way in which we understand, engage, and partner with patients globally in the design and conducting of research and development of medicines by focusing on unmet patient needs. They are bringing together relevant experts and synergizing disparate but complementary efforts that integrate the voice of the PATIENT across the lifecycle of medicine.

PFMD is driving the culture change and co-producing tools needed to make systematic patient engagement happen.

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The European Patients’ Academy (EUPATI) is a pan-European programme implemented as a public-private partnership by a collaborative multi-stakeholder consortium from the pharmaceutical industry, academia, not-for-profit, and patient organisations. The Academy was started, developed and implemented as a flagship project of the Innovative Medicines Initiative, and continues to be led by the European Patients’ Forum.

EUPATI supports patient engagement in medicines development by providing education and training to patients, industry, and other stakeholders through e-learning, face-to-face training, 23 national platforms, and an online Toolbox currently used by more than 4 million users in 13 languages.

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The European Patients’ Forum (EPF) is an independent non-profit, non-governmental umbrella organisation of patient organisations across Europe and across disease-areas.

Their 75 members include disease-specific patient groups active at EU level and national coalitions of patients.

EPF’s mission is to advance the interests of patients and patients’ communities by strengthening their collective impact across Europe through effective advocacy, education, empowerment, and partnership.

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